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Sunday, October 4, 2009

Fibromyalgia Wellness Project

The Fibromyalgia Wellness Project, a research study sponsored by the National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS), National Institutes of Health. This project is  conducted by Collinge and Associates, an independent research organization directed by William Collinge, PhD. The project is now inviting participation by people living with fibromyalgia.

What are the benefits?

  • You may discover new ways to reduce your symptoms and improve the quality of your life.

  • You will be contributing to knowledge that may help others living with fibromyalgia.

Who is eligible?

  • Adults (over 18) with fibromyalgia.

  • You must be able to read English and complete the assessment forms on this website.

  • You must have daily access to the internet at home to use SMARTLog.

What is involved?

  • Read the Consent Form and attest to your understanding and agreement.

  • Complete the Application Form on this site.

  • Fill out monthly surveys (10-20 minutes) on your well-being and quality of life, at the beginning of each month of use of the website, and at the end of the study period.

  • Complete the SMARTLog several times each week (about 5-10 minutes each time). You can do this in the evening before bed, or in several visits through the day.

  • Ask for and receive SMART Profiles telling you what inputs lead to reduced symptoms for you.

  • Try out new strategies on your own or treatments to see if they help you to reduce your  symptoms.

How long is the study?

This study is being conducted in two stages:

-- The first stage (“Alpha”) is three months.

-- The second stage (“Beta”) will be nine months.

-- You can participate in either or both stages.

The longer you participate, the more likely you are to learn strategies that reduce your symptoms. We recommend at least three months.


Sign up here: http://www.fmwellness.org

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